Please Join Us

Rare Disease Day 2023

Informational Kickoff Webinar

Wednesday, November 30, 2022

1:00 p.m. - 2:00 p.m. EST

You are invited to join NORD to kickoff planning for Rare Disease Day 2023! On Wednesday, November 30, 2022 at 1pm ET, NORD will host a public webinar to share opportunities to support the rare disease community. The information session will highlight what you can do to become a part of this global initiative to raise awareness about rare diseases!

Rare Disease Day is a patient-led international awareness campaign that highlights the challenges of the 300 million patients impacted by rare diseases worldwide. In 2009, the National Organization for Rare Disorders (NORD) became the official sponsor of the celebration in the United States.  We welcome you to the webinar and look forward to exploring the many ways you can Show Your Stripes!

The Rare Action Network® is powered by NORD, the leading non-profit organization serving the rare disease community through programs of advocacy, education, research and patient services.

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 280 patient organization members, is committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research, and patient services. www.rarediseases.org